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Jackie07 · 06-08-2013, 05:22 PM

Found her very first posting on this site in 2006. What a wonderful soul!

Angela~
I'm so sorry that you're going thru the shock, disbelief, guilt, sadness and all the other confusing emotions that come with this disease.
I was diagnosed Stage IV (liver mets) since my primary dx in May 2002. It was particularly frightening because my perception of Stage IV disease was so dark & ominious. But I'd never met any Stage IV'er like ME!! If I knew then what I know NOW...!
I have continued to teach Pilates throughout (4 days after the initial lumpectomy,and also 6 days after a mastectomy, as well resumed teaching after a liver resection) w/a post-op drain still in place, stitches and even a portable pump w/a continuous IV for one treatment I was on, but most importantly, I have continued living well and being well. I hope and believe that being active & visible and sharing my experience with women (& a few men) who take my classes will help change their perceptions of this disease.
True, our journey as Stage IV'ers can be quite a bit bumpier that early stage BC'ers, with more complex treatment histories, more surgeries & procedures, requiring us to be more diligent about our care. And unfortunately as Stage IV'ers there is no 5-year mark to look towards to be deemed "CURED".
BUT very little of my life these past 4 1/2 years has actually felt dark & ominous! And you will find so many wonderful, knowledgable, empowered friends on this site who can say the same & offer you wisdom, encouragement, comfort & support, in every way possible. We all have continued to have full, rich, active lives as we are survivING this disease.
We know more today about this disease & her2 than we did even a short 5 years ago. We have more treatment options. We have longer term data to support our survivability. Be sure to check out Christine's note on 12/24 - so encouraging, SO EMPOWERING!
We are Changing the Face of Breast Cancer. And survival begins the day you're diagnosed, not after 5 years. I thank God for this site & am so grateful to Christine & Joe for the community they've created for us. And now I know I'm not a Stage IV Anomaly - I've found SO MANY women "like ME" here!

Stay strong, and when you can't, LEAN HARD!

Keep the Faith~
Jessica

06-08-2013, 05:22 PM	#22
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Remembering jml our Jessica Found her very first posting on this site in 2006. What a wonderful soul! Angela~ I'm so sorry that you're going thru the shock, disbelief, guilt, sadness and all the other confusing emotions that come with this disease. I was diagnosed Stage IV (liver mets) since my primary dx in May 2002. It was particularly frightening because my perception of Stage IV disease was so dark & ominious. But I'd never met any Stage IV'er like ME!! If I knew then what I know NOW...! I have continued to teach Pilates throughout (4 days after the initial lumpectomy,and also 6 days after a mastectomy, as well resumed teaching after a liver resection) w/a post-op drain still in place, stitches and even a portable pump w/a continuous IV for one treatment I was on, but most importantly, I have continued living well and being well. I hope and believe that being active & visible and sharing my experience with women (& a few men) who take my classes will help change their perceptions of this disease. True, our journey as Stage IV'ers can be quite a bit bumpier that early stage BC'ers, with more complex treatment histories, more surgeries & procedures, requiring us to be more diligent about our care. And unfortunately as Stage IV'ers there is no 5-year mark to look towards to be deemed "CURED". BUT very little of my life these past 4 1/2 years has actually felt dark & ominous! And you will find so many wonderful, knowledgable, empowered friends on this site who can say the same & offer you wisdom, encouragement, comfort & support, in every way possible. We all have continued to have full, rich, active lives as we are survivING this disease. We know more today about this disease & her2 than we did even a short 5 years ago. We have more treatment options. We have longer term data to support our survivability. Be sure to check out Christine's note on 12/24 - so encouraging, SO EMPOWERING! We are Changing the Face of Breast Cancer. And survival begins the day you're diagnosed, not after 5 years. I thank God for this site & am so grateful to Christine & Joe for the community they've created for us. And now I know I'm not a Stage IV Anomaly - I've found SO MANY women "like ME" here! Stay strong, and when you can't, LEAN HARD! Keep the Faith~ Jessica __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 06-08-2013 at 05:36 PM..