HER2 Support Group Forums - View Single Post - Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)

ehower · 07-31-2012, 04:22 AM

Paul- or anybody out there.... My cancer has spread to the 6th cranial nerve which controls vision. I now have severe double vision and am cross-eyed. Very difficult to handle emotionally. I am going through radiation to try to stop the progression but it's not repairing the double vision. I have talked to my doctors about intrathecal herceptin but have gotten nowhere. I know I can't travel to France or IL to get the treatment. I'm going to try one last time with my oncologist on Thursday to see if he can contact the doctor at MD Anderson. I've fared through this whole cancer ordeal so well, but this has really got the better of me. Thanks for your encouragement. I need it so much...

Blessings,

Eileen

07-31-2012, 04:22 AM	#52
ehower Member Join Date: Jul 2012 Posts: 13	Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase Paul- or anybody out there.... My cancer has spread to the 6th cranial nerve which controls vision. I now have severe double vision and am cross-eyed. Very difficult to handle emotionally. I am going through radiation to try to stop the progression but it's not repairing the double vision. I have talked to my doctors about intrathecal herceptin but have gotten nowhere. I know I can't travel to France or IL to get the treatment. I'm going to try one last time with my oncologist on Thursday to see if he can contact the doctor at MD Anderson. I've fared through this whole cancer ordeal so well, but this has really got the better of me. Thanks for your encouragement. I need it so much... Blessings, Eileen