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Re: Emergency mri &%#@$!!
Hi Denise,
I'm so glad that it's not anything dire, although having experienced similar symptoms (all but the shaking arm), I know it feels pretty dire anyway.
We have different genes, which explains why your brain has held up better than mine did, even with the additional treatment you've been subjected to. But holding up better isn't immunity to the detrimental brain effects of the treatments.
Aricept has worked for me--I'm very nearly myself again, although I still tire pretty easily (whether the labor is physical or mental)--but I have another friend who's taking Ritalin. Focalin is also possibility (and it's better than Ritalin for those who are taking tamoxifen, although that doesn't apply to you). If one of those won't screw up the medicines you're currently taking, you might want to consider a trial just to see if it will help some of the symptoms.
Oh, and for the flying things? Try a sleep mask.
I hope you had a fabulous weekend.
Love,
rl
P.S. to everyone else: I'm trying to be back. I don't know how it will go, but I've missed you all terribly, so I'm put forth my best effort.
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2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
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