HER2 Support Group Forums - View Single Post - NEW POOPY UPDATE to NEW update on chrisy...scanxiety replay on the horizon

chrisy · 03-02-2012, 04:38 PM

Rhondalea/NEDenise - well,you have a really nice head. I don't think mine is as nice. My sister likes it, but then she's my sister. Last ride (2004) was in the winter, and I wore all different kind of hats. When it got warmer, what I liked about the no hair was it was really easy to apply sunscreen. Denise, I though helmet head was just for the progressive insurance lady. Can you get wigs like that? Just wondering.

Sheila - yes, a crapstick driver! Perfect! I can practice on potato balls. Yikes, I hope that dumb tumor doesn't get that big.

DebbieL - yes, MK2206. They should have better names, like TDM1. You could rap to that, right Flori? Side effects seem fairly typical, it's an oral drug so that frequently creates GI issues but we'll see. Plus add the usual taxol S/E. A side effect of the trial is wear and tear on the vehicle - 150 mi RT weekly. Also skin rash

I'll consider coming out of the closet and posting a new thread I like the idea of targeted good thoughts! Once I know for sure what I'm doing, I'll post. Promise.

03-02-2012, 04:38 PM	#48
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: NEW POOPY UPDATE to NEW update on chrisy...scanxiety replay on the horizon Rhondalea/NEDenise - well,you have a really nice head. I don't think mine is as nice. My sister likes it, but then she's my sister. Last ride (2004) was in the winter, and I wore all different kind of hats. When it got warmer, what I liked about the no hair was it was really easy to apply sunscreen. Denise, I though helmet head was just for the progressive insurance lady. Can you get wigs like that? Just wondering. Sheila - yes, a crapstick driver! Perfect! I can practice on potato balls. Yikes, I hope that dumb tumor doesn't get that big. DebbieL - yes, MK2206. They should have better names, like TDM1. You could rap to that, right Flori? Side effects seem fairly typical, it's an oral drug so that frequently creates GI issues but we'll see. Plus add the usual taxol S/E. A side effect of the trial is wear and tear on the vehicle - 150 mi RT weekly. Also skin rash I'll consider coming out of the closet and posting a new thread I like the idea of targeted good thoughts! Once I know for sure what I'm doing, I'll post. Promise. __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure Last edited by chrisy; 03-03-2012 at 09:06 AM..