Thread: Need input!
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Old 02-06-2016, 05:49 PM   #33
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Re: Need input!

Shame on that nurse with the bad attitude. I have meant a few, though it's rare.

Re my CT -- I get same day reports. I go to a place that does that, not to the Imaging Center that doesn't.

Been doing it that way since 1999. I am good. Onc surgeon says he is no longer worried about me having carcinoid tumor or any cancer in my mesentary. And, does believe I have omental caking. He was up tight when we met in August, but as I've jumped through all the hoops and passed all the tests, scans, biopsies and follow up CT -- yay!!!

I will meet my oncologist who I saw in Dec and gave the surg's report to in June, after my next CT. Will get a same day report then. But follow up visit will have to include me explaining WORDS to my doc who is so so sensitive and insightful and brilliant and articulate.

He is generally excellent with words. He is gentle but to the point. Has a fabulous manner, knows when to be aggressive, when to pass a problem on to a surgeon, etc.

It was his nurse practioner who I met once and seemed very lovely and informed and spiritual who used that phrase on the script. My onc was I suppose defending her.

I need him to explain to her about the use of words and their impact on the patient. I understand she was thinking of the radiologist and the insurance company but the script was given to me, the patient and I actually read all the details (which is a new a quite lengthy piece of paper covering A through Z).

SHE doesn't get it. And she needs to be more aware.

Since I complained about the assistant in December and my onc defended her, I wasn't going to push. My fav onc and I have been together since 1995. I have only once complained to him about a staff member who was brusque and impertinent (nurse). So mostly I offer praise galore.

This can wait till June, when we meet face to face.

No worries here.

Now let's focus on YOU. May all go well, Juls.

And again, please let us know how you are doing.

Hugs,
A.
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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