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Old 09-03-2012, 04:11 PM   #12
v-ness
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Join Date: Nov 2009
Location: western ma
Posts: 280
Re: arimidex side effects.

hi nancy - sorry to hear about your bone pain. i hope something helps soon. my mom got rheumatoid arthritis at age 29 and it was awful. over the years, she had her hip replaced twice, knee replaced, wrist replaced, ankle fused, and by the time she died it was in her back. mom really suffered a lot, and the damn Enbrel she took for it caused her to get a staph infection she could never be rid of with all of those prosthetic joints. i can't even imagine.... it hurts to get up from a squat (knees and lower back) but i am sure it's nothing compared to what she went through.

i feel a hundred times better now that i am OFF arimidex and switched over to femara. i think some of my joint pain/body aches are thanks to femara, but that's OK. no biggie. the only other side effect i had was that it gave me insomnia, but again no biggie. i just take it in the morning. so i feel pretty great, all told. hell, the body aches could be from being 52 and constantly doing physical labor and workouts anyway.

i quit taking oxybutynin for the hot flashes simply because i am sick of pills. that said, sometimes my forehead explodes in a steamy rainstorm and i get soaked - even my arms sweat! but cold weather is coming soon.

take care, nancy. did you ever ask about switching to another drug if arimidex is too much? valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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