View Single Post
Old 07-20-2006, 07:34 PM   #4
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
hmmm...

Hi Christine (great name)Well, I haven't noticed this, but then I haven't been looking for it. I did experience chemo brain when I was getting chemo - spacy, losing my place in the middle of a sentence - I was pretty much a head on a post.
When I went on Herceptin alone in March 05, the fog gradually lifted and as of now I feel that I am pretty much fully functional. I do work with numbers for a living and was pretty much worthless during chemo, but am "back to normal" as far as I can tell. So I guess if I have "Herceptin brain" , it is so far a mild case.
Regarding the general symptoms, I do occasionally have bouts of insomnia, which I have attributed to worrying about CT scans, stressing over work, or watching too much "24". I, too, am generally more laid back since living with this diagnosis definitely changes your view on what is worth getting worked up over. Surprisingly, I sleep better than ever most of the time.
I do find it difficult to get motivated, but again I have attributed this to changing priorities.
Sorry, this may not be very helpful, just my experience. Re the suduko, maybe your husband has been practicing!
I do take EPA/DHA supplements 6000 mg/day and some flaxseed oil...along with a host of other supplements, so maybe something is working...
Interesting topic - I'll be more aware of watching for these issues.
Take care
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote