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Old 05-18-2015, 07:27 PM   #6
Nurse4u2day
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Join Date: Feb 2014
Location: California
Posts: 410
Re: Diagnosed 1999, no recurrence. Chronic pain biggest problem.

I was diagnosed at 45 soon to be 47..you will see my regimen below. Bottom line I to suffered from EXTREME muscle and joint pain about six months into herceptin ... Thank goodness it lasted for only about 4 more months ( felt like I was 90) .. I was fortunate that my doctors believed that I was having this pain but would not definitely say it was chemo related hmmm. Anyhow the joint pain resolved but I still do get evening muscle aches that I now use ibuprofen for. The pain has gotten much better . I hope in time it will get better for you.
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11/13 Dx IDC left breast
11/13 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
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