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Old 05-10-2009, 10:17 AM   #18
swimangel72
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Join Date: Apr 2008
Location: NY
Posts: 240
My last Herceptin treatment (or two) caused me extreme fatigue.......and shortness of breath. I was convinced it was the Herceptin, but my onc thought I just had a cold and gave me antibiotics. Fortunately for me, the insurance company refused to pay for the last treatment so my onc said I could be finished - which was great so I didn't even bother fighting with the insurance company. My onc has me scheduled now for a final muga scan (I'm already feeling better - a month since my last Herceptin) and also a cat scan of my lungs since Herceptin can also cause lung problems. I was getting treated every two weeks - and although it was a bit of a drag ( especially since earlier in the year my port had to be removed) I didn't have any problems with the Herceptin. No pre-meds were necessary at all. I did experience a lot of bone pain but I assumed that was due to the Arimidex.

Anyway - all this to say - I do believe it's possible towards the end of a year or more of treatment with Herceptin that an infusion side effect could happen even if you've never had problems before.........possibly a person's body just plain gets tired of the drug!
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Kathy
2/5/08 - dx age 53, post-menopausal;
IDC Stage 1, Grade 1
ER+ 90% /PR+ 90% /Her2++++, BRAC1 & 2 neg
3/5/08 - mast with muscle-sparing free tram;
0/7 nodes clear; Stage 1 lymphedema in right arm
3/11/08 - MRSA infection in abdomen causes large hernia
4/11/08 - Oncotype DX score 22 (intermediate)
4/12/08 - Muga score 67%
4/23/08 - Chemo, Navelbine and Herceptin every 2 weeks
8/20/08 - Last Navelbine infusion! Yay!
1/22/09 - First mammo since dx - unaffected breast CLEAR!
1/30/09 - Second Muga score 63%
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