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Thanks, Amy! Such smart advice. My scan in March showed mixed results, with some lung nodules growing and some shrinking, and my onc switched me from THP to Kadcyla. I didn't question it; she said THP wasn't working. Wish I'd questioned a little harder.

April 28 was the first anniversary of my stage IV diagnosis. I was diagnosed with cancer only the year before.. I hope that I can hang around for many more. Thanks for your post, Amy. You give me hope!

Best to you,

Katherine

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Diagnosed 3/26/14 BC Stage 3a ER neg PR neg HER-2+
5 cm tumor in left breast, needle node biopsy positive
Started TCHP 4/25/14 - 6 rounds
Oncologist can no longer feel tumor, after 4th round
Chemo shrunk tumor to less than a mm
Lumpectomy and axillary node dissection 9/3/14
Radiation for 5 weeks, with boost
Herceptin until 4/3/15
CT Scan on 4/27 shows lung mets (lots of little ones on both sides, largest 1.6 cm) STAGE IV
Lung biopsy shows still HER2+++/ER-/PR-
Taxol with Herceptin and Perjeta May, June, July 2015
Lung mets reduced by 50%
Just H&P through Fall 2015
11/15 Progression
Back on Taxol with H&P January 2016
THP no longer working March 2016
Start Kadcyla 3/16 After first treatment, experienced low platelets, tongue turned black, had to have transfusion. Dry cough and shortness of breath for first week, improves over second and third.
4/16 Platelet transfusion after second treatment, blood blisters in mouth. Allergic reaction to platelets.
6/16 Kadcyla not working. Progression to liver, though lung mets smaller.
7/16 Start Xeloda and Tykerb.
11/16 Port infected. Taken out. Have to go off chemo.
1/17 Back on Xeloda and Tykerb
5/17 Tykerb and Herceptin
11/17 Navelbine and Herceptin
12/17 Progression in lungs, liver reevaluated, no progression
1/18 Haloven and Herceptin
2/18 Sloan Kettering consultation
3/18 Brain mets, 16 lesions, largest 16mm
3/18 Cyberknife to 16mm lesion
3/18 Haloven and Tykerb added
4/18 Scan shows all lesions significantly smaller! Some almost gone. Radiation oncologist says she's never seen anything like it
7/18 Brain scan shows progression, w/ with one new lesion. Don't want to do WBR. Will try for tucatinib.
8.15.18 Start Keytruda

05-01-2016, 05:50 AM	#20
KatherineM Senior Member Join Date: May 2014 Posts: 94	Re: Five Years Stage IV Thanks, Amy! Such smart advice. My scan in March showed mixed results, with some lung nodules growing and some shrinking, and my onc switched me from THP to Kadcyla. I didn't question it; she said THP wasn't working. Wish I'd questioned a little harder. April 28 was the first anniversary of my stage IV diagnosis. I was diagnosed with cancer only the year before.. I hope that I can hang around for many more. Thanks for your post, Amy. You give me hope! Best to you, Katherine __________________ _______________________ Diagnosed 3/26/14 BC Stage 3a ER neg PR neg HER-2+ 5 cm tumor in left breast, needle node biopsy positive Started TCHP 4/25/14 - 6 rounds Oncologist can no longer feel tumor, after 4th round Chemo shrunk tumor to less than a mm Lumpectomy and axillary node dissection 9/3/14 Radiation for 5 weeks, with boost Herceptin until 4/3/15 CT Scan on 4/27 shows lung mets (lots of little ones on both sides, largest 1.6 cm) STAGE IV Lung biopsy shows still HER2+++/ER-/PR- Taxol with Herceptin and Perjeta May, June, July 2015 Lung mets reduced by 50% Just H&P through Fall 2015 11/15 Progression Back on Taxol with H&P January 2016 THP no longer working March 2016 Start Kadcyla 3/16 After first treatment, experienced low platelets, tongue turned black, had to have transfusion. Dry cough and shortness of breath for first week, improves over second and third. 4/16 Platelet transfusion after second treatment, blood blisters in mouth. Allergic reaction to platelets. 6/16 Kadcyla not working. Progression to liver, though lung mets smaller. 7/16 Start Xeloda and Tykerb. 11/16 Port infected. Taken out. Have to go off chemo. 1/17 Back on Xeloda and Tykerb 5/17 Tykerb and Herceptin 11/17 Navelbine and Herceptin 12/17 Progression in lungs, liver reevaluated, no progression 1/18 Haloven and Herceptin 2/18 Sloan Kettering consultation 3/18 Brain mets, 16 lesions, largest 16mm 3/18 Cyberknife to 16mm lesion 3/18 Haloven and Tykerb added 4/18 Scan shows all lesions significantly smaller! Some almost gone. Radiation oncologist says she's never seen anything like it 7/18 Brain scan shows progression, w/ with one new lesion. Don't want to do WBR. Will try for tucatinib. 8.15.18 Start Keytruda