HER2 Support Group Forums - View Single Post - Good news update

StephN · 08-10-2007, 03:57 PM

This is EXACTLY what I was hoping for when I made my post. That more success stories would emerge either from some "lurkers" or new eyes to this board. We know there are more like us out there and by the responses to my post, it does so much good for those either just newly diagnosed or battling with mets.

Those down days can come too often for those in active treatment and these success stories can provide a so much needed lift. Even those of us cuddling with NED have our moments of doubt or wondering when the next met will rear its ugly head. It is a hard yolk to carry no matter what stage we are. Heavier some days than others.

I finally had time to book with my massage therapist for a visit today. Had not seen her in a few months. She also worked over the scar tissue that has developed from my lumpectomy and rads. Those changes have been going on for a while, but the thickening and stiffening of the tissue was getting uncomfortable.

THE BEST NEWS. While writing this post my Mom called. She said that the therapists got Dad on his feet and standing on his own today! This is the first time since early MARCH! Prayers along with some hard work are finally paying off.

08-10-2007, 03:57 PM	#29
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Dear I.V.W. - thanks for your story This is EXACTLY what I was hoping for when I made my post. That more success stories would emerge either from some "lurkers" or new eyes to this board. We know there are more like us out there and by the responses to my post, it does so much good for those either just newly diagnosed or battling with mets. Those down days can come too often for those in active treatment and these success stories can provide a so much needed lift. Even those of us cuddling with NED have our moments of doubt or wondering when the next met will rear its ugly head. It is a hard yolk to carry no matter what stage we are. Heavier some days than others. I finally had time to book with my massage therapist for a visit today. Had not seen her in a few months. She also worked over the scar tissue that has developed from my lumpectomy and rads. Those changes have been going on for a while, but the thickening and stiffening of the tissue was getting uncomfortable. THE BEST NEWS. While writing this post my Mom called. She said that the therapists got Dad on his feet and standing on his own today! This is the first time since early MARCH! Prayers along with some hard work are finally paying off. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.