HER2 Support Group Forums - View Single Post - Clinical trials

annettchen · 06-23-2014, 08:14 AM

I'm not sure, but I believe that doctors also only get the results once the trial is wrapped up, all numbers have been crunched and all data processed. So they may have anecdotal information based on what they see / hear, but might not want to share it, because it is anecdotal and could be misleading? My onco seems to be hesitant to share info on trials, too, but I figured it might be because I'm still in first line, so she feels there's no need... Also not sure how up to date each doc is on what's going on - there's lots of activity and they might have a hard time to stay abreast of everything.

I could be wrong, though...

06-23-2014, 08:14 AM	#2
annettchen Senior Member Join Date: Mar 2014 Posts: 95	Re: Clinical trials - are doctors allowed to talk? I'm not sure, but I believe that doctors also only get the results once the trial is wrapped up, all numbers have been crunched and all data processed. So they may have anecdotal information based on what they see / hear, but might not want to share it, because it is anecdotal and could be misleading? My onco seems to be hesitant to share info on trials, too, but I figured it might be because I'm still in first line, so she feels there's no need... Also not sure how up to date each doc is on what's going on - there's lots of activity and they might have a hard time to stay abreast of everything. I could be wrong, though... __________________ Annette ---------------------------------------- 03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic) 04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol) 07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working 10/2014: STABLE! 01/2015: STABLE! 04/2015: STABLE! 08/2015: STABLE! 12/2015: BRAIN METS. BODY STABLE.