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Old 01-24-2015, 04:39 PM   #12
rhondalea
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Join Date: Jun 2011
Location: Somerset, NJ
Posts: 485
Re: NeuVax reduces recurrence by 78.4% over 5 years

I do not agree that anyone who posts here has an obligation to post in a certain way or from a particular point of view. Nor do I agree that anyone here has the obligation to engage in advocacy of any kind.

We all have the same underlying disease. This is a support group, and we're here to help each other if we can. Personal attacks are not helpful, because they lead to bickering and bickering leads to stress that no one needs.

It's possible to educate and to put forth one's point of view about touchy subjects without making it about a particular person.

It's okay to be angry about the trial, Tonya, but it's not 'lizbeth's fault that you were not accepted, so please don't take it out on her. You can talk about your frustration with how trials are run without making it personal.

Welcome to the group.
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2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
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