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DianneS · 05-13-2009, 02:37 PM

No, I'm not taking anything except Herceptin. The onc may start me on aromatase inhibitors later but I am only weakly ER positive and PR negative so I don't know. I see her in June. I won't be done with Hercep until Oct.

I do have a really good diet. I don't eat junk food at all and have never liked processed food. I like to make things from scratch, and we eat organic 99% of the time. My leg cramps and achy ankles are much better. I walk every day and this seems to help.

Watery eyes/dry eyes/crusty eyelids seems to be from the Herceptin. I have seen a lot of posts here about that, yet my onc/pharmacist didn't find anything in the SE's concerning Herceptin and eye issues. Strange. I am using some eye ointment, which pharmacist said will last longer than drops. You just can't see anything for awhile with ointment

Runny nose off & on, definitely also Herceptin related. Fatigue, ditto.

Also, Taxotere and Taxol are in the same family of drugs but are not the same drug. I was taking Taxotere and was horribly allergic to it but did 5.5 rounds of the yuck.

Does it really take months to get the Taxotere/Carboplatin out of your system? Jeesh.

Diannes

05-13-2009, 02:37 PM	#9
DianneS Senior Member Join Date: Aug 2008 Posts: 327	No, I'm not taking anything except Herceptin. The onc may start me on aromatase inhibitors later but I am only weakly ER positive and PR negative so I don't know. I see her in June. I won't be done with Hercep until Oct. I do have a really good diet. I don't eat junk food at all and have never liked processed food. I like to make things from scratch, and we eat organic 99% of the time. My leg cramps and achy ankles are much better. I walk every day and this seems to help. Watery eyes/dry eyes/crusty eyelids seems to be from the Herceptin. I have seen a lot of posts here about that, yet my onc/pharmacist didn't find anything in the SE's concerning Herceptin and eye issues. Strange. I am using some eye ointment, which pharmacist said will last longer than drops. You just can't see anything for awhile with ointment Runny nose off & on, definitely also Herceptin related. Fatigue, ditto. Also, Taxotere and Taxol are in the same family of drugs but are not the same drug. I was taking Taxotere and was horribly allergic to it but did 5.5 rounds of the yuck. Does it really take months to get the Taxotere/Carboplatin out of your system? Jeesh. Diannes __________________ Three years and 5 months NED Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm Grade 3 8/9 Richardson/Bloom test ER+ weakly positive Alred Score: 4 (suggesting I would strongly benefit from hormone therapy) PR-, HER2 positive +++ No vascular invasion No lymph nodes involved Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!