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Old 02-09-2008, 01:33 AM   #375
Kathy S in Tokyo
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Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
Hi Kat, I'm the other Kathy (in Tokyo with 4 kids) but I think we might have the same husband or maybe "soul twins". Some guys are just clueless! I'm sorry that you're having such a hard time. Are you still on the Zometa? The list of side effects for that drug is fairly daunting and after dealing with diagnosis and all the other cancer treatments and also the Zometa it is no wonder you're not feeling so hot.

I'm glad that you managed to get out to a party and dance and hope that next time you won't worry so much about whether your dance partners knew that you were missing a breast. I hope that most guys out having fun are not really so worried about the package the fun comes in but the company itself and that you will eventually be able to relax about body image. Dancing ought to be good for your circulation at any rate.

Hopefully a dermatologist can help out with the brown skin patches and sores.

Big hugs,
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Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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