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Old 08-28-2011, 05:03 AM   #5
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: Does tdm1 work after herc+Tyk

Thanks you Ellie,

I was never re-tested for her2 and my lack of response to tyk and herc (or slow growth perhaps I do not know, it seemed that it was slowed down but who knows).

I wonder if I should do a Her2 serum to see that I am indeed def still her2 but wish I could do a P95 her2 test..

I think we are years away of it being approved because FDA has refused quick approval and therefore the review for approval is only planned for mid 2012.. then another year at the very least for the EU maybe much more.. Silly.

It seems to me that we should organise ourselves the way patient advocacy group for hiv organised themselves in the 80s and 90s to push for faster research and relaxed laws for trials. They achieved a lot I guess they were much younger and in good health unlike patients for cancer older and tired from treatments..
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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