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I had my first injectin on Wednesday, Oct. 15.
I experienced fluid retention in my ankles within 2 hours of receiving my first injection. Apparently this is a somewhat uncommon side effect but they have noticed it in 10% of the patients so far. I was also very tired for the next 24 hours and I still feel more fatigued than usual today.
I had very minor swelling at the injection site but I was told this could get worse after subsequent injections. Of course, I may be getting the placebo arm too....
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Janelle
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
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