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Believe51 · 06-25-2009, 12:47 PM

Two things that I owe great proaction by in this journey is......Thank goodness Ed is TM sensitive and I am always exploring and expanding my list of options. I know you too are content and feel the same way, Brenda. It is so vital IMO to have a list started, through time the list has been updated....add something....ah, take it away. I am so so thankful that I had this list because that in itself might have just saved my husband's life.

I have times of feeling helpless for him. It is always research and the questions I almost never have to ask OncoMan.....usually he has them answered before I ask. I love it when he asks if there are any questions, that is when I usually crumble my notes into a ball.

Research is something I wish I did not have to ever learn. I have always pushed that aside and empowered myself by overcoming that thought. Research and knowledge seems to be the one greatest tools I have to kick cancer in its teeth!

Here is to all of us in the brain met club and those whom are not. The head must usually always be treated seperately, as a seperate entity. It might be hard to handle the fact some may have had BBB drugs fail us in our mission. Please do not give up, help is on the way and science is running with this.

Miracle drugs are about to be born and added to our arsenal. Until then let us stand together and keep educated, it is our one common bullet to conquer this disease individually. Here is to being proactive and the courage to fight back for every breath!!>>Believe51

06-25-2009, 12:47 PM	#4
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Two things that I owe great proaction by in this journey is......Thank goodness Ed is TM sensitive and I am always exploring and expanding my list of options. I know you too are content and feel the same way, Brenda. It is so vital IMO to have a list started, through time the list has been updated....add something....ah, take it away. I am so so thankful that I had this list because that in itself might have just saved my husband's life. I have times of feeling helpless for him. It is always research and the questions I almost never have to ask OncoMan.....usually he has them answered before I ask. I love it when he asks if there are any questions, that is when I usually crumble my notes into a ball. Research is something I wish I did not have to ever learn. I have always pushed that aside and empowered myself by overcoming that thought. Research and knowledge seems to be the one greatest tools I have to kick cancer in its teeth! Here is to all of us in the brain met club and those whom are not. The head must usually always be treated seperately, as a seperate entity. It might be hard to handle the fact some may have had BBB drugs fail us in our mission. Please do not give up, help is on the way and science is running with this. Miracle drugs are about to be born and added to our arsenal. Until then let us stand together and keep educated, it is our one common bullet to conquer this disease individually. Here is to being proactive and the courage to fight back for every breath!!>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!