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Old 10-04-2010, 10:03 PM   #4
AlaskaAngel
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Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Re: More on giving up hope, taking up action

Debbie,

You never were one to just sit back and observe, but have invested heart and soul toward making as much sense of the trauma as possible, as a breast cancer patient with intuition and intelligence. You have made it your commitment to be very involved. It becomes a relationship.

With each passing year of survivorship there is no loss of appreciation for the experience of bonding and support with other breast cancer patients, but there is more awareness of time passing with lots of energy and money and time investment but not enough coordination and direction of the resources and the people.

What continues to disappoint me is that over time we have finally had more and more women in positions of knowledge and authority, yet there remain unspoken barriers to an open approach with respectful honest communication in health care about the realities involved in the analysis and treatment of breast cancer. To me that has to change.

AlaskaAngel
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Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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