View Single Post
Old 01-28-2010, 07:55 PM   #2
CourtneyL
Senior Member
 
CourtneyL's Avatar
 
Join Date: Aug 2008
Location: San Francisco
Posts: 260
Re: Any other Power Port patients here?

Hi Chelee - Funny you should ask about this - after resisting for nearly two years, I finally bit the bullet and had a power port put in today. I'm currently sitting at home reading all about my "Smart Port CT". I am hoping I don't have the problems you describe but I will definitely let you know if I experience them. After nearly 2 years of non-stop IVs for diagnostics, treatment, blood draws, my veins have had enough. I'm actually really excited to have the port. I am so sick and tired of getting my veins poked and prodded repeatedly and walking around with huge bruises on my arms. Enough is enough. I hope they actually use the port because I can't take any more needles. I hope they will start using your port too!
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
CourtneyL is offline   Reply With Quote