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Old 10-13-2013, 03:18 PM   #1
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Click & RAISE FUNDS for BC nonprofits

Everyone can participate and help raise funds for groups that support those with metastatic breast cancer.

As a follow-up to our 2013 program, Living Beyond Breast Cancer, Metastatic Breast Cancer Network and MetaVivor are partnering with Genentech to honor the 5th Anniversary of Metastatic Breast Cancer Awareness Day by launching a new interactive video wall to gather sentiments from the MBC community. Faces of MBC is asking participants to share through photos, words of wisdom and videos accomplishments within the MBC Community over the last 5 years and what they hope to see accomplished in the next five years. In addition, Genentech is donating $10 for each new upload and $1 for every unique page visit to nonprofits that support MBC initiatives (up to $20,000).




Below is some sample promotional language about our MBCA Day plans that would be great if you would be willing to post via Facebook or Twitter.






Suggested Tweets

Oct. 13

Today is #metastatic #breastcancer Awareness Day. View inspiring stories on #MBCProgress to raise $1 for MBC initiatives: www.facesofmbc.org



Week of Oct. 14

Share your thoughts on #MBCProgress on the Faces of MBC video wall. For each upload Genentech will donate $10 to MBC initiatives.www.facesofmbc.org



Suggested Facebook Posts

Oct. 13

Today is the 5th Anniversary of Metastatic Breast Cancer Awareness Day. Visit www.facesofmbc.org to share your thoughts on successes in the MBC community in the last 5 years and what you hope to see achieved in next 5 years. Faces of MBC will donate $10 for each new upload and $1 per unique view to nonprofits that support MBC initiatives (up to $20,000).



Week of Oct. 14

Help celebrate successes and push for future progress for people living with metastatic breast cancer. Share your MBC story on the #MBCProgress interactive video wall. Upload your story to www.FacesofMBC.org to raise $10 for MBC initiatives and share with your friends to raise $1 per unique view.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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