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Vicky · 06-17-2011, 07:03 PM

Hi everyone, I am a newbie here, although I've been reading for awhile. I was dx stage IV 1 hour before I was due for infusion for what we thought was stage III IDC in my right breast. I felt really fortunate to get on a trial for TDM1 and after 3 treatments my liver mets completely disappeared and there was shrinkage in the mets to my spine (18mm-13mm) and a smaller shrinking in the mass in my right breast from 4.4 cm to 4.2 cm. My onc. seemed pleased with the results and we will stay the course for now with TDM1.

I am also greatly inspired and encouraged to see so many stage IV survivors, thriving and living a good life! Thanks to all the veterans showing up to support and encourage all of us newbies, it truly makes a difference!

Vicky

06-17-2011, 07:03 PM	#72
Vicky Senior Member Join Date: May 2011 Posts: 137	Re: Calling all stage iv sisters Hi everyone, I am a newbie here, although I've been reading for awhile. I was dx stage IV 1 hour before I was due for infusion for what we thought was stage III IDC in my right breast. I felt really fortunate to get on a trial for TDM1 and after 3 treatments my liver mets completely disappeared and there was shrinkage in the mets to my spine (18mm-13mm) and a smaller shrinking in the mass in my right breast from 4.4 cm to 4.2 cm. My onc. seemed pleased with the results and we will stay the course for now with TDM1. I am also greatly inspired and encouraged to see so many stage IV survivors, thriving and living a good life! Thanks to all the veterans showing up to support and encourage all of us newbies, it truly makes a difference! Vicky __________________ 3-16-11 dx IDC 4.4 cm tumor, right breast,HER-2 neu 3+++, Stage III 3-25-11 PET scan shows 3 mets to liver and 1 to spine, Stage IV 4-12-11 start clinical trial of TDM1 infusion 1x every 3 weeks. 6-14-11 CT scan after 3 cycles shows NO liver spots, reduced spinal met from 18mm to 13mm and right breast mass from 4.4 to 4.2 cm. 8-12-11 Mastectomy rt. breast. 10-11 scans reflect stable cancer 12-11 MRI reveals area of concern in brain, CT scan reveals 3mm spot on lung. Watch and wait and rescan in a few weeks. Round 13 TDM1 complete. 2-21-12 Scans reveal progression in lungs with 4 new small mets. Officially off tdm1. Start halaven and radiation for single brain met, 1 spot in spine. 3-13 stereotactic radiosurgery for single brain met. 5-31-12 Halaven stopped due to low blood counts. Start tamoxifen and cont. Herceptin 1x3 weeks. 7-11-12- brain mri shows shrinking brain met and no new lesions. Cont. Herceptin and Tamoxifen 10-2-12 Stable tumor markers. Continue Herceptin and Tamoxifen 4-9-13 progression in lymph node under arm and new lung spots. Stop Tamoxifen. Add Xeloda to Herceptin. 6-10-13 Stereotactic radiosurgery to two new brain mets. Stop Xeloda due to lung mets progression. begin Tykerb 7-2-13. 10-29-13 Begin radiation to my lungs and one lymph node under my arm. Stop Tykerb until completion and then recommence. 1-31-14 Progression in lungs. Oophorectomy performed. 2-18-14 Begin Arimidex and continue Herceptin 7-7-15 progression with spots on colon, in pelvic region, and in lungs. Begin Taxotere, Perjeta and Herceptin. 11-15 Switch to weekly Taxol, and continue with Perjeta and Herceptin. 12-23-16 PET scan shows Complete Response with no new spots. Continue on with TPH indefinitely. 3-16-16 Still no evidence of disease, break from Taxol. Continue on with Perjeta and Herceptin.