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StephN · 01-19-2011, 10:42 PM

Sorry Carla -
But I do NOT understand why they have to remove those tumors BEFORE they do Gamma Knife. I had ONLY Gamma Knife to the tumors. My tumor in my cerebellum was 3 cm, so size was not an issue here.

CourtneyL has had something like 18 spots treated with targeted radio surgery now. Never any open surgery. It would be nice to have a more complete answer as to why you can't just have the Gamma Knife.

This is much less disturbing to the rest of your brain, and easier on you altogether!

Brenda has also only treated the spots without any open surgery. What is different about your tumors?

P.S. A friend of mine here just had cyberknife on 4 spots in her brain and that is the end of it. No GK to tumor bed or whatever.

01-19-2011, 10:42 PM	#29
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: Help! Brain mets besides lung mets Sorry Carla - But I do NOT understand why they have to remove those tumors BEFORE they do Gamma Knife. I had ONLY Gamma Knife to the tumors. My tumor in my cerebellum was 3 cm, so size was not an issue here. CourtneyL has had something like 18 spots treated with targeted radio surgery now. Never any open surgery. It would be nice to have a more complete answer as to why you can't just have the Gamma Knife. This is much less disturbing to the rest of your brain, and easier on you altogether! Brenda has also only treated the spots without any open surgery. What is different about your tumors? P.S. A friend of mine here just had cyberknife on 4 spots in her brain and that is the end of it. No GK to tumor bed or whatever. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.