HER2 Support Group Forums - View Single Post - Ovaries are being retired...chemically. Need advice

sassy · 04-07-2015, 09:09 PM

Heathcliff,

FYI, I tried all three of the AI's over the course of 8 years to see which was most tolerable. For me it turned out to be Arimidex.

Exemestane was the worst-- my hips were so stiff and painful I had difficulty walking.

Femara causeed joint stiffness mostly in my feet, ankles and legs overall, that did not seem to diminish with exercise.

Arimidex caused stiffness in my hands primarily in the mornings, and some overall body stiffness, however movement and exercise helped reduce the effect.

Hope this info might help!

PS- would that suppression be from Zoladex rather than Zometa?

04-07-2015, 09:09 PM	#12
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	Re: Ovaries are being retired...chemically. Need advice Heathcliff, FYI, I tried all three of the AI's over the course of 8 years to see which was most tolerable. For me it turned out to be Arimidex. Exemestane was the worst-- my hips were so stiff and painful I had difficulty walking. Femara causeed joint stiffness mostly in my feet, ankles and legs overall, that did not seem to diminish with exercise. Arimidex caused stiffness in my hands primarily in the mornings, and some overall body stiffness, however movement and exercise helped reduce the effect. Hope this info might help! PS- would that suppression be from Zoladex rather than Zometa? __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED! Last edited by sassy; 04-07-2015 at 09:16 PM..