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chrisy · 04-09-2012, 01:45 PM

Emelie,

When I am most speechless, I tend to respond by blabbing out of Control!

I know this must have been a challenging decision for you and your family, and I very much admire you for having the clarity and strength to go through that process.

I have heard many times that families (including the patient)'s big regret was in waiting too long to consider this option. The level of compassion, support and as you say, freedom to accept what is and focus on what matters most is not to be underrated. Liberation from this constant battle may be profoundly healing in its own right. You are already thinking a two to fourfold poke in Stat's eye.

I also appreciate that you brought this to the "other", her2 family, and the way in which you delivered the message...with respect and compassion for all of us wherever we are in the fight. Giving us permission to be in a different place while asking that we respect your own carefully considered decision. Acceptance, not defeat; and your best choice for you.

My prayer for you is that you find peace and joy, live your life to the fullest with those most important in your life, and that you are constantly warmed in God's loving light, encircled by our warm and loving prayers for you and your family.

I hope you do continue to "check in" with us periodically, you know we love you very much here, even those of us who have never had the blessing of knowing you in person

Much love to you and your family, and may you have MANY months or years (people do flunk out of palliative care, you know) of quality time with those you love most.

Chris

04-09-2012, 01:45 PM	#5
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: Pallative Care Emelie, When I am most speechless, I tend to respond by blabbing out of Control! I know this must have been a challenging decision for you and your family, and I very much admire you for having the clarity and strength to go through that process. I have heard many times that families (including the patient)'s big regret was in waiting too long to consider this option. The level of compassion, support and as you say, freedom to accept what is and focus on what matters most is not to be underrated. Liberation from this constant battle may be profoundly healing in its own right. You are already thinking a two to fourfold poke in Stat's eye. I also appreciate that you brought this to the "other", her2 family, and the way in which you delivered the message...with respect and compassion for all of us wherever we are in the fight. Giving us permission to be in a different place while asking that we respect your own carefully considered decision. Acceptance, not defeat; and your best choice for you. My prayer for you is that you find peace and joy, live your life to the fullest with those most important in your life, and that you are constantly warmed in God's loving light, encircled by our warm and loving prayers for you and your family. I hope you do continue to "check in" with us periodically, you know we love you very much here, even those of us who have never had the blessing of knowing you in person Much love to you and your family, and may you have MANY months or years (people do flunk out of palliative care, you know) of quality time with those you love most. Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure Last edited by chrisy; 04-09-2012 at 01:54 PM..