FYI, " Our Her2 Cancer Struggle " ( on FB), has posted the Video of our December " FDA Blocks Life-Saving Cancer Drug Rally " on Youtube. Please watch all 4 Parts, and pass the links on to your media,advocacy and political contacts ! We Are Not Going Away !!
Heres the link to Part 1:
http://www.youtube.com/watch?v=JlsrTqwUL6g
And , yes , Lorraine is still being forced to travel to Va. to get Herceptin T DM-1. Even though she has no visible disease, and has been stable at 3.0, every 3 weeks, since last July !! At the highest levels of bureaucracy, Genentech , Partners, FDA, you have folks who see only " black or white, statistics, numbers, ". These Execs have No contact w/ pts in chemo rooms ..rules are rules etc. " Thats why we must Speak , and be Heard ! This is about Saving Patients Lives !!
We dedicate the Rally Videos to all those Stage IV Her2 + FIGHTERS who never got a chance to try this miracle drug in 2011 ! Approval Must Come in 2012 ! Speak up , make the calls , and FOLLOW UP w/ more calls !!