HER2 Support Group Forums - View Single Post - Access to T DM-1

phil · 11-10-2011, 07:23 PM

I promised to keep you all up to date. We continue to be stone-walled by top execs at Genentech, and forced by them to travel to Va. Thats the truth, and they continue to try to blame Partners IRB. We know different. Some of you out there in Calif. will have to try and explain this co. to us. Brilliant researchers, callous businessmen, breakthroughs and blunders. Movie material. Dr. Mukherjee ought to write a book on Gen. alone. Has anyone ? Its definitely tragic for women/men asking for a chance , at single pt access.
Dont forget this FDA, the " 1,000 lb gorilla in the back of the room ", punishing Genentech for pushing a true miracle drug... and trials drag on, 5 years ...
Back to Lorraine. Just got back from Va. yesterday. Second dose working well, tumor markers at continued all time low, 14. Thanks to generous family, friends, it cost us " only " 400 $ , cheapest yet.
Seriously, this has only increased the strain on Lorraine. When will it end ? we fight on...
Oh, those new to this site, Genentech monitors it, so keep that in mind, speak your mind. I do.

11-10-2011, 07:23 PM	#52
phil Senior Member Join Date: Nov 2010 Posts: 393	Re: Access to T DM-1 I promised to keep you all up to date. We continue to be stone-walled by top execs at Genentech, and forced by them to travel to Va. Thats the truth, and they continue to try to blame Partners IRB. We know different. Some of you out there in Calif. will have to try and explain this co. to us. Brilliant researchers, callous businessmen, breakthroughs and blunders. Movie material. Dr. Mukherjee ought to write a book on Gen. alone. Has anyone ? Its definitely tragic for women/men asking for a chance , at single pt access. Dont forget this FDA, the " 1,000 lb gorilla in the back of the room ", punishing Genentech for pushing a true miracle drug... and trials drag on, 5 years ... Back to Lorraine. Just got back from Va. yesterday. Second dose working well, tumor markers at continued all time low, 14. Thanks to generous family, friends, it cost us " only " 400 $ , cheapest yet. Seriously, this has only increased the strain on Lorraine. When will it end ? we fight on... Oh, those new to this site, Genentech monitors it, so keep that in mind, speak your mind. I do.