HER2 Support Group Forums - View Single Post - attn: Rolepaul, Marvass et al Review article on IT herceptin stresses need 4 ClTrial

dchips1 · 12-18-2013, 07:04 PM

How did Nina feel with the IT Topotecan. I am getting the 100mg of IT herceptin and that overall goes very well.
Waiting for neurosurgeon to review t-spine, no new lesions t3-4 not measurable T8-9 grew 3mm and now have lots of edema again, will probably have to go way up on steroids from my 2.0 to 4-5 mg. Otherwise body clear. Has topotecan been used alot in the csf? kinda stuck not being able to pull data from internet for oncologist to contemplate using IT topotecan.

I have so much nerve pain, This past month and a half so many family new cancers, deaths, surgeries, it has been crazy.
Just worn, emotionally and physically. scared of being paralyzed or stroking.

I know that that God is Good and I am not giving up.
Merry Christmas to everyone!!

Darita

12-18-2013, 07:04 PM	#21
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Re: attn: Rolepaul, Marvass et al Review article on IT herceptin stresses need 4 ClT How did Nina feel with the IT Topotecan. I am getting the 100mg of IT herceptin and that overall goes very well. Waiting for neurosurgeon to review t-spine, no new lesions t3-4 not measurable T8-9 grew 3mm and now have lots of edema again, will probably have to go way up on steroids from my 2.0 to 4-5 mg. Otherwise body clear. Has topotecan been used alot in the csf? kinda stuck not being able to pull data from internet for oncologist to contemplate using IT topotecan. I have so much nerve pain, This past month and a half so many family new cancers, deaths, surgeries, it has been crazy. Just worn, emotionally and physically. scared of being paralyzed or stroking. I know that that God is Good and I am not giving up. Merry Christmas to everyone!! Darita __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.