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Old 06-21-2018, 03:42 PM   #3
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Re: ZW25 for any Her2+ ER/PR+ or neg. when Herceptin, et al stops working

He was very excited about this and is a very knowledgeable onc. Check it out for sure and keep track. I know it's new here but I am discovering with him that it all depends on your oncologist and his connections and interests. I am soooo lucky to have him treating me. His reaction when the ovarian/breast cancer conflict came up was that he would simply get creative to deal with it. I always come away from my appointments feeling very optimistic.

Thinking of you Juls,

Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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