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dchips1 · 12-08-2012, 07:47 AM

Pia,
This is a common event that happens. I use the Coq10 daily. I use costco's Kirkland brand 300mg 1 time per day. Mega red krill oil, and flax also daily.

I was on herceptin for about a year and a half, then had to take a 3 month holiday. EF less than 50%. After that I hover around 66%.
Other than that I have been on it weekly since 3/2006. I have found that If I change brands of the Coq10, which is the case for many supplements, It did not work as well. I think your body becomes accustomed to a certain one. Kinda like how you like your coffee, substitues are ok just not your favorite.
Walk, pedal a bike or stationary bike, yoga whatever to keep active and it helps your whole bresat cancer recovery and your HEART. One less appointment for a short time!
Prayers and Holiday blessings to you
Darita

12-08-2012, 07:47 AM	#8
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Re: Low EF Pia, This is a common event that happens. I use the Coq10 daily. I use costco's Kirkland brand 300mg 1 time per day. Mega red krill oil, and flax also daily. I was on herceptin for about a year and a half, then had to take a 3 month holiday. EF less than 50%. After that I hover around 66%. Other than that I have been on it weekly since 3/2006. I have found that If I change brands of the Coq10, which is the case for many supplements, It did not work as well. I think your body becomes accustomed to a certain one. Kinda like how you like your coffee, substitues are ok just not your favorite. Walk, pedal a bike or stationary bike, yoga whatever to keep active and it helps your whole bresat cancer recovery and your HEART. One less appointment for a short time! Prayers and Holiday blessings to you Darita __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.