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Emelie B · 07-31-2012, 07:17 AM

Hello ladies,
I want you to know it was such a pleasant surprise to see your delightful messages. I first want to say I hope all our cards and well wishes are getting thru to Christine. She so deserves all we can do for her.

Also, I have been so enheartened with all the good results coming out of the new therapies. I just wish it was easier to obtain what we need, when we need it.

I am in the midst of obtaining a PET and bone scan for bone mets now. Have to follow all the Medicare rules as this is just a palliative care measure for managing the pain in my bones. It can be tricky with hospice and the "rules".
Other than that, I have been having such a good time with friends and family, that it should be shameful.
My husband and I just celebrated our 27th wedding anniversary and had a great time. All of my kids have been here visiting off and on, and we have made some of the best memories ever.
Please know I think of you all often, though I don't log on like I used too.
I will keep in touch and have asked my family to at least update you on major changes.
Take care all, and I really do hope you all are enjoying the remainder of summer as I am.
Emelie

07-31-2012, 07:17 AM	#12
Emelie B Senior Member Join Date: Jan 2010 Posts: 170	Re: Emelie Hello ladies, I want you to know it was such a pleasant surprise to see your delightful messages. I first want to say I hope all our cards and well wishes are getting thru to Christine. She so deserves all we can do for her. Also, I have been so enheartened with all the good results coming out of the new therapies. I just wish it was easier to obtain what we need, when we need it. I am in the midst of obtaining a PET and bone scan for bone mets now. Have to follow all the Medicare rules as this is just a palliative care measure for managing the pain in my bones. It can be tricky with hospice and the "rules". Other than that, I have been having such a good time with friends and family, that it should be shameful. My husband and I just celebrated our 27th wedding anniversary and had a great time. All of my kids have been here visiting off and on, and we have made some of the best memories ever. Please know I think of you all often, though I don't log on like I used too. I will keep in touch and have asked my family to at least update you on major changes. Take care all, and I really do hope you all are enjoying the remainder of summer as I am. Emelie __________________ Nov. 2006-IDC with Her2 +++ A/C for 3 rounds Dec. 2006- Herceptin and Taxotere March 2007-MRM with 8 of 14 lymph node involvement May 2007-36 Rads Sept. 2007- Stopped Herceptin Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone Feb. 2010- Started Herceptin/Taxol and Zometa April 2010-PET scan clear. Herceptin and Zometa June 2010- Stopped Herceptin continue Zometa and still NED August 2010-Back on Herceptin and Zometa every 3 weeks August 13, 2010- Had another port placed August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks Nov. 2010-PET scan clear Feb. 2011-Brain MRI clear March 2011- PET scan clear May 2011- PET scan clear Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin April 2012- Entered palliative care June 5, 2012-Entered hospice care Planning my memorial