HER2 Support Group Forums - View Single Post - Calling all stage iv sisters

Hi Amy,

I'm also a long term bc survivor --1994 and counting.

Just completed 14 months on the TDM1 trial, looking now to get into a different clinical trial.

I am still here, first on prayers and good friends, 2nd on the excellent care I've received from my oncologist, Doctor Godfrey. God bless him! 3rd and final...life is wonderful, even when things don't seem to go your way, you must continue on keeping your faith, be proactive, educate yourself, participate on clinical trials if you can, after all this is your life, take control of it.

Stay positive.

Love,

Adriana

__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane

12-17-2011, 06:43 AM	#152
Adriana Mangus Senior Member Join Date: May 2006 Location: California Posts: 668	Re: Calling all stage iv sisters Hi Amy, I'm also a long term bc survivor --1994 and counting. Just completed 14 months on the TDM1 trial, looking now to get into a different clinical trial. I am still here, first on prayers and good friends, 2nd on the excellent care I've received from my oncologist, Doctor Godfrey. God bless him! 3rd and final...life is wonderful, even when things don't seem to go your way, you must continue on keeping your faith, be proactive, educate yourself, participate on clinical trials if you can, after all this is your life, take control of it. Stay positive. Love, Adriana __________________ 1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3. 28 nodes neg Er,Pr, Positive HER2 status unknown 2003- Recur to rt lung.July 16 ( B-Day!) Her2+++ Er,Pr, Negative 2003 - Aug04--Navelbine + Herceptin 2004- 2007--NED - Herceptin, only 2007 Feb-April Xeloda added to hereceptin 2007-May Back on Navelbine+Herceptin 2008-Feb-Mar 15 Ses Rad to Rt. Lung 2008- Oc 17 Add Tykerb to Herceptin 2009- June-- Discont Tykerb 2009 July 7--Current Taxol + Herceptin 2009 Dec--Discontinued treatment due to progression. Looking into cyberknife. 2010-Aug Accepted to TDM1, no SE, except liver count went up. 2010-2011 September got kicked out of the trial, due to a small spot found on lung. 2011- 2012 September thru early 2013 on Herceptin 2013- March Bone density shows small spot on 5th rib. 2013 - April 4th appt with onc. will post after discussing course of treatment. 2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal. 2013 April Herceptin- TDMI 2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results. 2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween. 2013 October/November Brain-MRI nothing new. Repeat MRI next year in May. 2013 December Continue Herceptin and Perjeta. Stable at the moment. 2014 February Brain MRI -clear! 2014 January Added Taxotere to Perjeta+Herceptin. 2014 March Stopped chemo-chest ct-scan next. 2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin. 2014 April Perjeta+ Halaven 2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away. 2014 June Continue on Perjeta + Halaven-- no more cough. Stable 2014 June Back on Herceptin + abraxane Last edited by Adriana Mangus; 12-17-2011 at 07:00 AM..