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Old 03-19-2010, 08:24 PM   #19
LoriG
Senior Member
 
Join Date: Jan 2010
Posts: 28
Re: Tykerb/Xeloda, side effects??

Just an update...went to MDA this week. My PET not only showed not evidence of mets but also no evidence of active cancer in the breast! I was SHOCKED. My ultraound confirmed scar tissue in the breast but does not look like active disease. I am FINALLY ready for surgery!! I realize there is likely still a decent amount of microscopic cancer in the breast, but this is a hige change from my PET 3 months ago which showed a ton of FDG activity in the breast.

Anyway, just thought I would share.

Thanks, everyone! Ellie, hope your upcoming scans go well!
__________________
Lori, age 33
*IBC (ER+,PR-,Her2+) on right diagnosed 8/09 with metastatic lymph node left axilla (Er-,PR-,Her2+) vs possible bilateral breast cancer
*A/C x4
*Taxol x4 with weekly herceptin
*Breast MRI 12/09- no improvement
*PET scan 12/09- no evidence of mets
*Tykerb/Xeloda 12/09
*Bilateral MRM 4/10
*Twice daily rads to both chest walls and both axillas 5/10-6/10
*9/10 PET/CT- NED
*Tykerb/Xeloda until 12/10
*Tykerb and Tamoxifen 12/10-current. Bye bye Xeloda
*2/11- malignant pleural effusions bilaterally (likely lymphangitic lung mets) and skin mets
Herceptin and Ixempra
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