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StephN · 08-11-2018, 01:28 PM

Getting caught up. WOW to it all and CRAP on a crapstick to it all.
I know you are trying to enter the trial that has the best looking chance at turning around the disease, but that bit of tumor they want may break the deal.

About the flair. Now many, many years post gamma knife, my zapped brain spots STILL read with flair after a 3-T brain MRI. The area of flair never increases and is mainly showing in the smaller of the two areas. We basically ignore it.

About the Myth of Sisyphus rock you are shouldering uphill. That Greek king was being punished with that task, and I have no idea why we cancer patients need to get in line with our boulders to push uphill, but that is part of the deal, unfair as that may be. Part of the absurdity of being, seems to me. Even this far out from active treatment my "rock" is still not far from view reminding me I have to stay as strong as possible in every way, and ready for anything.

About hypnotherapy. I have done this. Was an interest of mine long before cancer showed up, so I had this ability to put myself into a short trance, and give my body instructions. Not something I have shared until now, but I bring it up because I got benefit from it and Donoco may have some tips that could have a positive effect for anyone open to that. (I also find that dancing is a kind of trance, and can be theraputic.)

This rambling post may not be of value, but I want you to know that I am sending the Universe instructions to help you!

08-11-2018, 01:28 PM	#65
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: Cancer 'n Me Getting caught up. WOW to it all and CRAP on a crapstick to it all. I know you are trying to enter the trial that has the best looking chance at turning around the disease, but that bit of tumor they want may break the deal. About the flair. Now many, many years post gamma knife, my zapped brain spots STILL read with flair after a 3-T brain MRI. The area of flair never increases and is mainly showing in the smaller of the two areas. We basically ignore it. About the Myth of Sisyphus rock you are shouldering uphill. That Greek king was being punished with that task, and I have no idea why we cancer patients need to get in line with our boulders to push uphill, but that is part of the deal, unfair as that may be. Part of the absurdity of being, seems to me. Even this far out from active treatment my "rock" is still not far from view reminding me I have to stay as strong as possible in every way, and ready for anything. About hypnotherapy. I have done this. Was an interest of mine long before cancer showed up, so I had this ability to put myself into a short trance, and give my body instructions. Not something I have shared until now, but I bring it up because I got benefit from it and Donoco may have some tips that could have a positive effect for anyone open to that. (I also find that dancing is a kind of trance, and can be theraputic.) This rambling post may not be of value, but I want you to know that I am sending the Universe instructions to help you! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.