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Cannon · 08-22-2009, 10:16 AM

I had my port removed Thursday - the third anniversary of my diagnosis was the week before, and I realized I was ready (kept dreaming about my surgeon).

Clear scans on Monday of this week -- NED.

Had a minor panic attack when my onc's office called me on Friday -- my onc is never in on Fridays.

Turns out my potassium is low (again, I've had trouble with that before - no reason, possibly the Crohn's).

And I called twice to get the rx called in to my pharmacy, but apparently, it was only urgent enough to tell me, not urgent enough to actually call the rx in. Got some OTC, taking more.

I start a new job on Monday - have been unemplyed since April. Excited and nervous.

Rebecca

08-22-2009, 10:16 AM	#1
Cannon Senior Member Join Date: Oct 2007 Posts: 203	Port Overboard! I had my port removed Thursday - the third anniversary of my diagnosis was the week before, and I realized I was ready (kept dreaming about my surgeon). Clear scans on Monday of this week -- NED. Had a minor panic attack when my onc's office called me on Friday -- my onc is never in on Fridays. Turns out my potassium is low (again, I've had trouble with that before - no reason, possibly the Crohn's). And I called twice to get the rx called in to my pharmacy, but apparently, it was only urgent enough to tell me, not urgent enough to actually call the rx in. Got some OTC, taking more. I start a new job on Monday - have been unemplyed since April. Excited and nervous. Rebecca __________________ Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++ Neoadjuvant A/C 4X Dose Dense 11/06 Bilateral Mastectomy (no choice on the right, my choice on the left) Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07 33 Rads Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier) Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause BRCA negative - lots of cancer in my family survivor of thyroid cancer also have Crohn's disease CT and bone scan say NED as of 5/13 dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35 1/13 Acute pancreatitis - are you kidding me? 9/13 started Humira for Crohn's. starting to have some energy again B12 and Vit D both needed supplementation Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years? 4/14 Kidney stones/blockage/infection - related to Crohn's Disease 5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year 6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.