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Old 12-28-2008, 12:49 PM   #1
juliet
Junior Member
 
Join Date: Sep 2005
Location: Ridgewood, NJ.
Posts: 3
Thumbs up 7 year IBC anniversay

Especially for those of you newly diagnosed, I wanted to, hopefully, give some encouragement to those of you with IBC (and those who are also Her2 positive). I was offically diagnosed with IBC Dec. 22, 2001. It was a long haul to get a correct diagnosis with much wasted time and frustration on my husband's and my part as "any first year medical student would know this is a mastitis." (That quotation was from the head of surgery in our local hospital!) Fortunately, I left the NJ area and I was accepted into a trial at Dana Farber Cancer Inst. in Boston after I was deemed Her2 positive, and began with Navelbine/Herceptin, MRM, AC, Taxol/Herceptin, radiation/Herceptin, then Herceptin to round out the year's worth. (Herceptin was only used for metastatic cancer at that point). Protocols have somewhat changed, I know, but I have not had a recurrence!
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