HER2 Support Group Forums - View Single Post - Gammaknife, Tykerb...reality check

Denise, Tykerb is fickle. When I took it in the spring I had no side effects. I've been on it over a week now with intense nausea, cramps and sudden intense diarrhea several times day and night. Are you taking Zofran? I've added lots of ginger to my diet and it seems to be helping. Fresh ginger snaps from the bakery are wonderful.

__________________
Vicki
Lord, give me the comfort of Your embrace and acceptance of Your will.

3/11: DX: IDC, HER2++, ER/PR neg, stage 4, mets to liver. Primary tumor: grade 3; 11 cm. 2nd smaller tumor: ~2.5cm. Multiple affected nodes, 1 spot on liver. 6 rounds TCH prior to bmx.
7/11: Nothing left except Primary breast tumor now 1.5cm.
8/11: BMX, 17/17 nodes clear. No post-op chemo or radiation indicated. NED!
10/11: NED! Continue Herceptin indef.
2/12: Reoccurence of liver mets; both lobes. Tykerb added to Herceptin.
5/12: Progression of liver mets. Stop Tykerb, start Abraxane & Herceptin weekly.
8/12: Progression in liver and lymph nodes around liver and right kidney. Herceptin not working anymore! Stop Abraxane and Herceptin. Start Tykerb and Xeloda.
10/12: Severe side effects. 3 weeks break from everything.
12/12: It's working! All tumors gone except 2 (from 20+) Continue Tykerb and Xeloda. Brain and spine MRIs clear.

09-05-2012, 06:32 PM	#51
Vicki revised Senior Member Join Date: Mar 2012 Location: Alabama Posts: 121	Re: Gammaknife, Tykerb...reality check Denise, Tykerb is fickle. When I took it in the spring I had no side effects. I've been on it over a week now with intense nausea, cramps and sudden intense diarrhea several times day and night. Are you taking Zofran? I've added lots of ginger to my diet and it seems to be helping. Fresh ginger snaps from the bakery are wonderful. __________________ Vicki Lord, give me the comfort of Your embrace and acceptance of Your will. 3/11: DX: IDC, HER2++, ER/PR neg, stage 4, mets to liver. Primary tumor: grade 3; 11 cm. 2nd smaller tumor: ~2.5cm. Multiple affected nodes, 1 spot on liver. 6 rounds TCH prior to bmx. 7/11: Nothing left except Primary breast tumor now 1.5cm. 8/11: BMX, 17/17 nodes clear. No post-op chemo or radiation indicated. NED! 10/11: NED! Continue Herceptin indef. 2/12: Reoccurence of liver mets; both lobes. Tykerb added to Herceptin. 5/12: Progression of liver mets. Stop Tykerb, start Abraxane & Herceptin weekly. 8/12: Progression in liver and lymph nodes around liver and right kidney. Herceptin not working anymore! Stop Abraxane and Herceptin. Start Tykerb and Xeloda. 10/12: Severe side effects. 3 weeks break from everything. 12/12: It's working! All tumors gone except 2 (from 20+) Continue Tykerb and Xeloda. Brain and spine MRIs clear.