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Re: What can I expect from brain rads?
Oh! Thank you so much for responding! I'm glad to hear that your wife is doing well. This is wonderful! The docs have me on dex but I don't think it's helping my headaches so I stopped taking it and I feel better. Weird, I know. But Ativan helps. Docs say that the tumors are small enough that I am probably asymptomatic, but like I said, I do have headaches. I must admit that my great fear is having a seizure. My other fear is WBR. I'm having another MRI of the brain done on Wed so that my mask/head gear can be made next week. My onc also said I might be eligible for tykerb. I asked her about herceptin since I'm stage 4 but she said "no herceptin" since my body is clear. Hmmm. I thought herceptin was continued if stage 4, but does it exclude me since I have brain mets?
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June 2013 DX Stage 3 Idc, rt breast, er/pr-, her2+++
PET/CT/Brain MRI clear
ACTHP until Dec 2013
BMX Dec 2013
28 Rads Feb 2014
Exchange surgery June 2014
Herceptin end Sept 2014
Headaches start Oct 2014
CT body clear Nov 2014
Brain MRI 4 lesions Nov 2014
SRS via LINAC in Dec 2014
Rt side infection, hospitalized, lost right implant on Jan 1, 2015
Jan 14 2015 MRI brain lesions shrinking
Jan 27 2015 Re-start herceptin every 3 weeks
Feb 2015 CT/PET Body clear
Re-start Lymphedema treatment April 2015
Breast MRI clear April 2015
Brain MRI April 2015 - shows everything stable, nothing new (whew)
CT scan June 2015 - clear
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