HER2 Support Group Forums - View Single Post - PROGRESSION: lung +++ ?brain mets -> Palliative Care

hermiracles · 08-07-2008, 12:14 PM

You folks are amazing! Thanks you so much for your kind words, encouragement and information! It will take me a bit to understand it all.

There's so much I want to say to you but right now I have to keep it brief - it's 4.30am here in Australia!! I seem to have become insomniac recently! though Im very tired now and obviously do need to go to bed.

Monday I will have what I think is my last dose of Herceptin. Even though I have read the research on the good outcomes with combined herceptin and tykerb - apparently here in Australia you are not allowed to be on them both at the same time! - and if you do start on Tykerb you cant go back onto the herceptin at all!?

Then I will see my Onc after that and discuss more about the next Step.

Thanks so much for sharing your love and courage and wisdom.
Blessings all
Hermiracles

PS My Onc reckons he has patients with lung mets who have been stable for more than 4 years ~ so I guess where's there's life there's hope eh? Anyways how could I give up when I wake up to these 2 smiling faces every morning? :-)) Thanks so much for being here.

08-07-2008, 12:14 PM	#33
hermiracles Senior Member Join Date: Oct 2007 Location: Australia Posts: 309	Oh my goodness!! You folks are amazing! Thanks you so much for your kind words, encouragement and information! It will take me a bit to understand it all. There's so much I want to say to you but right now I have to keep it brief - it's 4.30am here in Australia!! I seem to have become insomniac recently! though Im very tired now and obviously do need to go to bed. Monday I will have what I think is my last dose of Herceptin. Even though I have read the research on the good outcomes with combined herceptin and tykerb - apparently here in Australia you are not allowed to be on them both at the same time! - and if you do start on Tykerb you cant go back onto the herceptin at all!? Then I will see my Onc after that and discuss more about the next Step. Thanks so much for sharing your love and courage and wisdom. Blessings all Hermiracles PS My Onc reckons he has patients with lung mets who have been stable for more than 4 years ~ so I guess where's there's life there's hope eh? Anyways how could I give up when I wake up to these 2 smiling faces every morning? :-)) Thanks so much for being here. __________________ 2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx 04/07 2 miracles born ~ very grateful 06/07 Susp areas L/b 09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear 11/07 Portacath - FEC 15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere 12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H 2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain 09/08 Stop H complete Epirubicin 1wk PC new brain mets 10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm. 01/09 Tumour markers normal! Rx to L/arm 03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD 07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude. *************** Last edited by hermiracles; 08-07-2008 at 12:26 PM..