[Ellie F]

Hi again
Nancy is quite right in her advice. When I recurred my second opinion onc INSISTED that they check the status of the nodes. Mine had remained exactly the same but we know that some can and do change status.
One of the problems Nancy for us in England is that tykerb is NOT approved by NICE (the body that decides what we can and can't have-bean counters)so the only way to access it is usually via a cliincal trial. To the best of my knowledge we don't have one yet of herceptin and tykerb. The whole set up is very maddening!! We also don't get PET scans. Again you either have to pay a lot privately or have one as part of some reserch or trial.I constantly harrass my onc about both these issues. He's sympathetic but says it all comes down to funding.

Ellie