HER2 Support Group Forums - View Single Post - Calgon take me away.....test or not to test.

Jackie07 · 10-27-2013, 07:21 PM

Glad your Dad is doing better.

The 'ice cold' issue could be neuropathy or simply being anemic - especially both your hands and feet feel the same way. I'm sure you have routine blood panel done and will be treated for anemia if the number is low. Try to walk 30 minutes everyday. The nerve cells are being connected by electric impulses. The more we exercise, the more jumping over. And little by little, all the nerve tissues will get back to normal.

The reason why your oncology nurse / doctor had scheduled you for an electrocardiogram is because reduced heart function could cause fluid not being pumped back to the heart properly, thus leads to swelling. I had experienced that after my 4th TCH and the doctor ordered an EKG. No, they don't like to explain it to us, I had to look it up and figure it out. My heart continued to be affected by the infusion, and so the Herceptin part was given 'weekly' (so the dose would be smaller) and I stopped after just 4 weekly treatment.

Hope everything gets back to normal soon (if there's such thing called 'normal'

. Sending you good vibes.

10-27-2013, 07:21 PM	#9
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Calgon take me away.....test or not to test. Glad your Dad is doing better. The 'ice cold' issue could be neuropathy or simply being anemic - especially both your hands and feet feel the same way. I'm sure you have routine blood panel done and will be treated for anemia if the number is low. Try to walk 30 minutes everyday. The nerve cells are being connected by electric impulses. The more we exercise, the more jumping over. And little by little, all the nerve tissues will get back to normal. The reason why your oncology nurse / doctor had scheduled you for an electrocardiogram is because reduced heart function could cause fluid not being pumped back to the heart properly, thus leads to swelling. I had experienced that after my 4th TCH and the doctor ordered an EKG. No, they don't like to explain it to us, I had to look it up and figure it out. My heart continued to be affected by the infusion, and so the Herceptin part was given 'weekly' (so the dose would be smaller) and I stopped after just 4 weekly treatment. Hope everything gets back to normal soon (if there's such thing called 'normal' . Sending you good vibes. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 10-27-2013 at 08:34 PM..