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Cellomomof5 · 02-12-2012, 08:56 AM

Hi N,
Hope you are still feeling ok after round 1. I have been on TDM1 for about 10 months - I have three more infusions of it to go to finish out the year long study. My reactions are fairly mild and predictable, and I've learned to work my life around them for the most part. I get TDM1 on a Thursday, start to feel a bit feverish and achy Friday night, and feel a bit flu-ey for most of that weekend. I use 3 Advil every 8 hours to get through that part while doing a normal weekend schedule. Monday can be a bit tough at work - tired and achy, but then things improve fast, and I'm fine until the next infusion. Like others said, elevated liver enzymes, low platelets, and for me, muscle aches and cramps are pretty much it. Occasional nosebleeds at night - particularly in the winter time when it's dry.

Compared to the other drugs such as Adriamycin and Cytoxan, it's a drug on which you can live, work and even enjoy your life.

Hope it works well for you.
-Karen

02-12-2012, 08:56 AM	#10
Cellomomof5 Member Join Date: Mar 2011 Posts: 8	Re: Any Sistas on TDM1??? Hi N, Hope you are still feeling ok after round 1. I have been on TDM1 for about 10 months - I have three more infusions of it to go to finish out the year long study. My reactions are fairly mild and predictable, and I've learned to work my life around them for the most part. I get TDM1 on a Thursday, start to feel a bit feverish and achy Friday night, and feel a bit flu-ey for most of that weekend. I use 3 Advil every 8 hours to get through that part while doing a normal weekend schedule. Monday can be a bit tough at work - tired and achy, but then things improve fast, and I'm fine until the next infusion. Like others said, elevated liver enzymes, low platelets, and for me, muscle aches and cramps are pretty much it. Occasional nosebleeds at night - particularly in the winter time when it's dry. Compared to the other drugs such as Adriamycin and Cytoxan, it's a drug on which you can live, work and even enjoy your life. Hope it works well for you. -Karen __________________ Karen Age 49 1/24: dx IDC in right breast 2/16: lumpectomy, axillary node removal path: Stage 3 grade 3 IDC, ER+, PR+, Her2+++, 5/13 nodes 3/10: began 4x AC 5/12: began 17x T-DM1 8/1: 6 weeks rads 9/20: started Tamoxifen 4/12: Last T-DM1 infusion!!!!