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Please tell her that I am praying for her BIG TIME, to let God carry her when she needs him most - like the Footprints poem. Tell her it's julierene, or Julie - the one that has talked with her privately about dating. She will know who I am. I just keep hoping that they will find some medicine that will work again! This so sucks! When it's people like Joy, you just think they will keep on going and going... like an energizer buddy. For us though, it's one of those inevitable feelings like our time will eventually come. I was at that point in January of this year, but guess what? They found the right combo, and it WORKED! Tell her - my old treatment worked!! If she has no more options, tell them to try an old one. I know she was curious to see if it was going to help. It DID! Tell her not to give up and that I am sending much of my love! Julie
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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