HER2 Support Group Forums - View Single Post

agness · 09-11-2015, 12:07 PM

It was originally approved in 2013 for locally advanced disease as neoadjuvant treatment. They were going to expand the target group over the past year so you should qualify now. I know someone who had surgery first and then was found to be triple positive as you are and she was able to get it as an adjuvant treatment with herceptin.

Look into ovarian suppression as well (Zoladex or Lupron), it might be worth it at least during treatment with Herceptin. It was rough with TCHP -- it also works to inhibit malignant cells in the breast like tamox but doesn't stimulate the female reproductive organs.

09-11-2015, 12:07 PM	#4
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: Perjeta Qualifications? It was originally approved in 2013 for locally advanced disease as neoadjuvant treatment. They were going to expand the target group over the past year so you should qualify now. I know someone who had surgery first and then was found to be triple positive as you are and she was able to get it as an adjuvant treatment with herceptin. Look into ovarian suppression as well (Zoladex or Lupron), it might be worth it at least during treatment with Herceptin. It was rough with TCHP -- it also works to inhibit malignant cells in the breast like tamox but doesn't stimulate the female reproductive organs. __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.