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Old 06-16-2010, 06:35 AM   #1
Senior Member
Join Date: May 2010
Location: Ireland
Posts: 271
Any lung mets survivors??

Can never seem to see a post from lung met survivors, very scary as have just been diagnosed with that. Asked oncologist how big it was and he said 'we dont deal in size'. not very reassuring. anyway hoping herceptin/taxotere will control it. would love to hear of anyone who has been treated successfully. I realise its incurable now (he told me) but is it manageable? he says they have a lot more drugs in store for me if the t&h stop working. have to believe these drugs will work, otherwise will crack up. any help would be really appreciated.
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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