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Old 05-31-2013, 01:22 PM   #20
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Join Date: May 2010
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Re: kadcyla side effects

Yanyan, The benedryl knocks me out almost instantly but then I wake up wide awake. I have had trouble sleeping the night of tx, possibly due to the 1-2 hour nap at chemo so I am jealous. I don't sleep well as it is and 12 hours sounds heavenly. I don't think the benedryl can affect you with that much of a delay. My understanding is that the pills have a slower start and the infusion hits your system very quickly but they both wear off fairly quickly. Maybe your adreniline was up during the day and the let down came that night. I don't know. I have had most of my se's starting late Fri. on and off till Mon. (I also have a Thur. transfusion). I have heard others say their appetite was down the first week after and then returned the second 2 weeks. Mine decreased a little but I ususually don't have trouble with appetite. I go in again next week so I'll see if anything has changed.
__________________
3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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