[phil]

my wife's 4 month scans just came back , still NED ! , 34 doses , 7 at fullstrength, 3.6, then areduction to 3.0 to help plats. started tx in nov, 2010. ned since nov , 2011
her s'e s of fever, chills, fatigue lessened after several doses. but plats are an issue that can knock some off the drug, so be pro-active. we balance getting as much as possible of the full strength to kill cancer with protecting bone marrow. Lorraines plats started dropping after first dose, from 220,000 range to 100,000, then to 90,000 by third dose. in hindsight we should have started protecting blood counts then. plats went below 40,000 because of sepsis, related to old stents, then up above 50,000, and we got an exception to continue tx., now in 65,00-75-000 range, occ. up to 80's, once to 96 past yr. we are spacing tx out carefully , to 3-4 weeks, and plats are slowly rising, but we want to make sure cancer stays away. we follow ' our own style of a " neo-paleo diet , greens, fruits, nuts and , yes , top quality , red meat like porterhouse , bone in , some fat , not too lean. sharks liver oil and chlorophyll from health food store. works for Lorraine.
she has neuropathy that was already there, but is worse.
Lorraine was helped by aggressive tx from beginning , at top research network - at MGH in Boston. recommend that all stage iv get to research hospital early, or get second opinion. if we had stayed in suburbs, she would be dead today. kept cancer contained to liver area, but still grew to 7 + tumors in liver, more squeezing akidney shut, bile duct shut All Gone ! Praise God... we plan on taking it until something better comes along , God Bless , and Heal