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Old 12-17-2013, 10:58 AM   #5
Senior Member
Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
Re: Lymphedema Issues

I have had lymphadema for over 8 years and have it pretty well under control. I try to eat a very low sodium diet, don't lift anything over 10 lbs or do repetitive motions with that arm.
I would wrap your arm as much as you can, definitly when you are sleeping and anytime you are at home. I assumed they showed you exercises to do at home. It is imp to do these everyday. If they didn't give you exercises, you need to find a different therapist.
If your sleeve is still too tight (you have red marks left on the top of your arm or in the crease of your elbow) you need to be refitted.

diagnosed stage 2- 3/2005
4.5 cm & 2+ nodes , er/pr- & HER2+
4 AC
12 taxol/Herceptin
Year of Herceptin
liver mets- July-2010
7 taxotere/Herceptin
RFA- Feb.2011
U of Wa vaccine trial-oct 2011-Feb 2012
Ned - 2 1/2 years
Herceptin & perjeta
Ned 3 years
Herceptin- reducing treatments , due to s/e, to 5-6 a year
NED- 3 1/2 years
Ned - 4 years
2/15- stopped herceptin - on no treatment
Lauriesh is offline   Reply With Quote