HER2 Support Group Forums - View Single Post - Any long term skin mets survivors?

Thanks all for your response. I am due to have a CT scan soon and then meet with the oncologist to see if medication needs to be changed. Jackie, thanks for those study cases, I had paclitaxel last year. I will mention both paclitaxel and toremifene at my next consultation.

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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.

11-01-2010, 04:33 AM	#8
Delaney Senior Member Join Date: May 2010 Location: Ireland Posts: 271	Re: Any long term skin mets survivors? Thanks all for your response. I am due to have a CT scan soon and then meet with the oncologist to see if medication needs to be changed. Jackie, thanks for those study cases, I had paclitaxel last year. I will mention both paclitaxel and toremifene at my next consultation. __________________ Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr. dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin. Stopped taxtere/herceptin, now on tyverb/xeloda. Lung mets shrinking. Back on Herceptin with T/X. Partial response. Skin mets progressing. Radiation scheduled mid february 2011. Spot found on hip - radiation to hip beginning mid February 2011. Now trying Gemzar/Tyverb/Herceptin and Zometa. CT scan Feb 2011 - lung clear! Brain mets (specks) - radiation mid Feb. Brain Scan June'11 - Clear CT Scan June'11 - Good - skin met active - watch and wait. Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.