Hi Chrisy,
How did u guess that I was having LVEF issues. My LVEF is at 45 and that means I am not able to start Tykerb, even though my husband is ready to pay out of pocket.
I do regular yoga, walk and take 400 mg COQ10 but still it went down.
I am working nowdays to bring the EF back.
At the same time my husband and my onc is going to try to get me Tykerb offlabel based on the ALTTO clinical trial.
Is there anyone on the board taking Tykerb at LVEF at 45?
Regards,
Rupali
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